Holding the Line

I wonder if we don’t all have some degree of cyclical highs and lows. Periods of great energy, flatter ones. Downright low spells. It’s really difficult some days to maintain the health and energy necessary to keep your outlook focussed on the positive. After the heady celebratory mood following the improvement apparent on Vera’s September […]

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On Hope and Inspiration

The week or two leading up to Vera’s regular MRI’s are challenging. They are every 3 months. Before the last one, in September, I had a long night of fear, despair and tears, and finally I laid it at the mercy of, I don’t even know what to call it, God I guess. I prayed […]

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Snow Day

Is it weird that I love the dark cold days of winter? Sure, by mid March we are depleted and over it, but this time of year? Late fall? I can’t wait for life to slow down. I have always been completely inept at rest. Racing against time to get take it all in, to […]

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Art is Life

“I write entirely to find out what I’m thinking, what I’m looking at, what I see and what it means.” -Joan Didion I found this quote on Design for Mankind, a well written personal blog by Erin Loechner I just started following. And it’s perfect. Since no one but my mom will be reading this […]

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Standing on the Shoulders of Giants

Everyone is clear that social media exists to turn us into passive consuming zombies feeding a higher digital intelligence at the service of Swiss bank accounts right? And our kids? Compulsively plugged into YouTube and TikTok? Furtively staying up all hours to press the dopamine button over and over like junkies? Will they turn out […]

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Ramblings and Beginnings

I’ve made a commitment to create a habit of writing in the morning. Small but consistent habits are something I struggle with. But I never miss morning coffee. First thing. My morning coffee ritual is something I look forward to going to bed at night. It’s an indulgence to pause and sit quietly. It’s an […]

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A Fragile Hope

Most of you will have heard the WONDERFUL news that Vera’s September MRI looked IMPROVED from the previous one! We cried, we celebrated. We are cultivating a fragile hope. We are grateful. So lucky that the tumor caused seizures when it was very small to alert us of its presence. And that the surgeon decided […]

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CHRONOLOGY OF THE NIGHTMARE WE CAN’T WAKE UP FROM: PART 2

Brain Surgery. Who we are resides in spirit, that’s a thought worth holding onto. But modern science thinks the brain is where we reside. Our intellect, personality, emotions, memories. I’ve never faced anything more terrifying than consenting to our baby girl to go under the knife for brain surgery. While most of the world was […]

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Chronology of the Nightmare we can’t Wake Up from: Part 1

In 2020 we became a “medical family”. Here are the events as they unfolded. Mostly unembellished by the emotional storm we were tossing around in for just over a year as our girl started to show signs that something was seriously, terrifyingly wrong. 2019 In 2019, in her eleventh year, our sweet Vera started having […]

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